Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still we manage to roll out and attempt our days. Through these days, we load up on B vitamins and caffeine, and most days it still isn’t enough. We’ve tried exercise to see if we can raise our endurance and some days, it still isn’t enough. We sit at work, stare at the clock, and long for our comfortable bed. It’s almost too painful to be awake.
Most physicians, and people, do not understand this. Especially when they see us out in the world and there doesn’t appear to be anything wrong. Just a hint of a facial expression that just barely lets people know that something isn't right. Doctors seem to go to what is easiest in many cases. They try to adjust our vitamins or diet right before they accuse us of ‘faking it’ or exacerbating our symptoms.
So how do you make yourself be heard?
Make sure you have your medical records along with any personal research you’ve done and bring in the information you’ve collected (testing, symptoms, etc.).
2. Help the physician connect the dots!
You want to have made these connections prior to your appointment. What do you know about the condition that you want your physician to research? What connections have you made (i.e. joint dislocations in connection with Ehlers Danlos Syndrome or symptoms of Chronic Fatigue such as loss of memory, excessive exhaustion after physical or mental stressors or events/activities). If you’d like to learn more about Ehlers Danlos Syndrome, check out our blog post 7 Symptoms of EDS that Google Won’t Tell you About. If you find that your doctor is unresponsive to your needs, then you will need to likely go for a second opinion. A good medical team listens and responds. After all it’s your insurance and funds that support the profession so in essence they work for their patients. Ensure that you are a good patient as well. Always remain professional no matter what the irritant.
3. Remember that YOU are your BEST advocate!
Don’t give up! This journey may be exhausting, but you are deserving of answers and treatments. People or physicians may make you feel detached or burdensome. IGNORE THAT! Find your strength that is buried deep down under the rubble and pull it out of your reserves. Find things that encourage you like music or art. Anything that keeps your mind active and sharp, and never forget that you are stronger than you know. You have come this far, even if you are scraped, bruised and bleeding. You are here. Right now, in this moment, and so long as your living, there is opportunity to move forward.
You deserve a life free of judgement and pain. Here at Actify, we understand what chronic fatigue is like and all of the challenges that come with it. And we’d love to help. If you’d like to know more about what we can do for you, give us a call at (561) 366-2435. We’re ready to work with you to not only make everything more manageable, but more enjoyable. Because life should be more than just manageable.