Hypermobile Ehlers-Danlos Syndrome
How to live a full, happy, and pain free life - even with EDS
Can you place your hands flat onto the floor while keeping your legs straight? Or maybe bend your little finger back past 90 degrees?
Do your joints often dislocate doing regular daily activities?
Have you been told that you are hypermobile or been diagnosed with Ehler's Danlos Syndrome?
If you have hypermobile EDS (hEDS) it's very tempting to think that you have to just live with it, that this is just the way it has to be. Or, maybe you haven't been diagnosed, but your symptoms fit with those above.
Maybe it seems like you've tried everything under the sun to manage your pain and live a normal life.
If this sounds like you, you're not alone - we hear this type of thing among many of our hypermobile clients. In fact, we have two staff members who deal with this on a regular basis. And, when it comes to living with hEDS, everybody we see wants to know
"Why is this happening to me?"
"Will I ever be able to live a 'normal' life?"
Most people with hEDS think that they are simply "stuck" living the way they have been for years. That they have to avoid doing activities that they love out of fear of dislocations or more pain.
Does this sound like you?
Another thing we see all of the time here is when people go to the Doctors, and the Doctor tells them that they don't understand where their pain is coming from. They say things like "but you're so flexible" or "you're strong so we don't understand why you're in pain."
This is rarely helpful towards getting the correct diagnosis and on the path towards healing. Worse, it can lead towards an incorrect diagnosis, or treatment with dangerous surgeries or a prescription of painkillers. This is extremely frustrating as you work to find a solution.
Has this type of thing happened to you?
Characteristics of hEDS range from mild, such as loose joints, to severe, such as functional bowel disorders and incisional hernias. The joints and skin are most commonly affected. Joints may have a wide range of movement (hypermobility), be unstable, and tend to move out of place (dislocate) frequently. The shoulder, knee, and jaw are some of the joints that dislocate most often. The skin of a person with Ehlers-Danlos syndrome hypermobility type is often soft or velvety and may be easily stretched and overly flexible (hyperextensible), although this is variable.
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Here are 7 More Reasons you Could have hEDS
Your joint instability causes frequent sprains, tendinitis, or bursitis when doing activities that would not effect others
You have joint pain that gets in the way of living your daily life
You suffer from dislocations or subluxations, especially in the shoulder. This severely limits your ability to push, pull, grasp, reach, etc.
Soft skin with normal or only slightly increased extensibility
Absence of fragility or other significant skin or soft tissue abnormalities
Fleshy, heaped-up growths or patches of skin that do not resemble the area that surrounds it (molluscoid pseudotumors), associated with scars over pressure points such as the elbows and knees
Surgical complications, such as incisional hernia or wound dehiscence (sutures tearing through tissues and failing to hold)
If any of these have happened to you - we would love to help you by inviting you to book a call to talk with one of our hEDS specialists to find out what can be done to help you.
Click the link below to book a call with us if you would like to get some solid advice given to you over the phone. The phone call is complimentary and there is no obligation to book any appointments with us after the call is over. Our goal is to help you make the right decision about what to do next for the best.