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Dr. Marcia C. Perretto, DPT

EDS/HSD Gynecological Care

Updated: Feb 19


EDS/HSD Gynecological Care

This post serves as a reminder to our women EDS/HSD warriors to not forget about your gynecological care! When you are constantly going to physical therapy, neuro appointments, or cardio appointments, it’s easy to forget about something that you subconsciously take care of on a monthly basis: gynecological care!


Researchers have emphasized that young women with EDS/HSD should receive early gynecologic counseling and treatment, since they are more prone to painful, irregular periods, and heavy menstrual bleeding. These problems can really impact your wellbeing, even if it is something that you have convinced yourself you need to “just deal with”.


Over half of adolescents with EDS/HSD reported increased cramping, heavy bleeding, and irregular menstrual cycle. But only 10% sought out help for their symptoms. These symptoms can have a large affect in your day to day life, especially on top of EDS pain. So it’s important to address these issues, ladies!


Safe and effective treatments to control painful periods and heavy bleeding are long active reversible contraception (LARC), which includes IUDs, or the pill. It’s important to stress that these treatments are NOT solely for preventing pregnancy, but instead to help regulate the hormonal imbalances in the body in order to have a regular, MANAGEABLE menstrual cycle.


For adult patients with Ehlers Danlos Syndrome or Hypermobility Spectrum Disorder, regular gynecological appointments are even more important, especially if you are looking to have a family. We have a higher risk of pregnancy associated complications including miscarriages, ectopic pregnancies, and premature delivery.


This post does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this page.

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